There are loads of organisations that exist to help you and your family. Take a look below to find what's right for you.
Together for Short Lives is the UK charity for children and young people who are expected to have short lives. We want to help every child and family living with a life-limiting or life-threatening condition get the very best care and support they can so they can make the most of every moment together.
Website offering information for patients, families, children, and anyone interested in genetic conditions. Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK. Their members and the people they support are at the heart of everything they do.
