There are loads of organisations that exist to help you and your family. Take a look below to find what's right for you.
Ehlers-Danlos Support UK (EDS UK) aims to support, advise and inform those living with the Ehlers-Danlos syndromes. They work to minimise the impact of EDS by making its diagnosis, treatment and management accessible to everyone when they need it. Ehlers-Danlos Support UK (EDS UK) provide support through local physical and virtual support groups led by trained volunteers and via their freephone helpline.