There are loads of organisations that exist to help you and your family. Take a look below to find what's right for you.
Website offering information for patients, families, children, and anyone interested in genetic conditions. Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK. Their members and the people they support are at the heart of everything they do.
Erb’s Palsy Group offers advice, information and support to families affected by Erb’s Palsy. Erb’s Palsy, also known as Brachial Plexus Paralysis, is a condition, mainly due to birth trauma, that can affect 1 or all of the 5 primary nerves that supply the movement and feeling to an arm. Each baby’s injury is individual.
Disabled Living is a registered charity which provides impartial information and advice about equipment and services for disabled individuals, their families and carers. They have a range of resources to support specialist teams and also work closely with the commercial sector to showcase equipment designed for those with disabilities and additional needs.
The Council for Disabled Children is part of the National Children’s Bureau family. They are the umbrella body for the disabled children’s sector with a membership of over 300 voluntary and community organisations and an active network of practitioners that spans education, health and social care.
Online