There are loads of organisations that exist to help you and your family. Take a look below to find what's right for you.
Ehlers-Danlos Support UK (EDS UK) aims to support, advise and inform those living with the Ehlers-Danlos syndromes. They work to minimise the impact of EDS by making its diagnosis, treatment and management accessible to everyone when they need it. Ehlers-Danlos Support UK (EDS UK) provide support through local physical and virtual support groups led by trained volunteers and via their freephone helpline.
The Wirral Multicultural Organisation give service users a voice, celebrate their diversity, promote multiculturalism and help address racism, supporting anyone with an ethnic background to live harmoniously together and with the wider community. They tackle inequalities by providing professional, social and culturally-sensitive services that improve the overall health and wellbeing of people with ethnic backgrounds living here on the Wirral.
Wirral Multicultural Organisation, 111 Conway Street, Birkenhead, Wirral CH41 4AF