Unique is a registered charity. Our mission is to inform, support and alleviate the isolation of anyone affected by a rare chromosome disorder, copy number variant or single gene disorder associated with learning disability/developmental delay and to raise public awareness. Whenever you are in the world, you are not alone in this journey!
At Unique we run telephone and email helplines for new and existing member families and professionals. We can try to answer your questions about specific rare chromosome disorders and some autosomal dominant single gene disorders that are associated with intellectual disability/developmental delay/ medical issues/behavioural issues. Whatever your question, or if you just want to talk to someone, please do not hesitate to pick up the phone.
Who is this aimed at?
Anyone affected by a rare chromosome disorder
Where
Support is available online and via helpline and email
Cost
Free
How to get involved
Please visit the Unique website for more information.
Contact details
Helpline
Phone: 01883 723356
Email: help@rarechromo.org
General enquiries
Email: info@rarechromo.org
For further information
For more information about Unique search Unique in this directory.
Visit the Unique website
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