There are loads of organisations that exist to help you and your family. Take a look below to find what's right for you.
Ehlers-Danlos Support UK (EDS UK) aims to support, advise and inform those living with the Ehlers-Danlos syndromes. They work to minimise the impact of EDS by making its diagnosis, treatment and management accessible to everyone when they need it. Ehlers-Danlos Support UK (EDS UK) provide support through local physical and virtual support groups led by trained volunteers and via their freephone helpline.
Families can connect with support and local services all under one roof. Family Hubs are for all families with children aged 0-19 (up to age 25 with SEND) to help build connections and strengthen relationships. They provide information and support to adults in those families addressing a range of topics.
North Birkenhead Development Trust, St James Centre, 344 Laird Street, Birkenhead, Wirral CH41 7AL